EP supports creating EU Health Data Space to boost access to data and research | Nieuws | Europees Parlement

 

EP supports creating EU Health Data Space to boost access to data and research 

Persbericht 
 
 
  • Citizens will be able to access prescriptions, imagery and lab tests from different EU member states 
  • Aggregated health data to be shared for research purposes e.g. into cancer and rare diseases 
  • Strong privacy safeguards governing how and for what aim sensitive data are shared  

On Wednesday, MEPs adopted their position on creating a European Health Data Space to ease access to personal health data and boost secure sharing.

The new European Health Data Space (EHDS) would empower citizens to control their personal healthcare data and facilitate secure sharing for research and altruistic (i.e. not-for-profit) purposes. Plenary adopted the report, which will serve as Parliament’s negotiating mandate in talks with Council on the final form of the legislation, with 516 votes in favour, 95 against, and 20 abstentions.


Better healthcare with portability rights


The law would give patients the right to access their personal health data across the EU’s different healthcare systems (so-called primary use), and allow health professionals to access data on their patients, strictly based on what is necessary for a given treatment. Access would include patient summaries, electronic prescriptions, medical imagery and laboratory results.

Each country would establish national health data access services based on the MyHealth@EU platform. The law would also set out rules on the quality and security of data for providers of Electronic Health Records (EHR) systems in the EU, to be monitored by national market surveillance authorities.


Data-sharing for the common good with safeguards


The EHDS would allow aggregated health data, including on pathogens, health claims and reimbursements, genetic data and public health registry information, to be shared for public interest reasons, including research, innovation, policy-making, education and patient safety purposes (so-called secondary use). Sharing data for advertising or for assessing insurance requests will be banned.


Stronger safeguards for sensitive data


MEPs want patients to have more say in how health care providers use their data. They propose an opt-out system for the secondary use of most health data, and demand that it be mandatory to have a patient’s explicit consent for the secondary use of certain sensitive data (e.g. genetic and genomic information).

Parliament also aims to expand the secondary uses to be banned, for example in the labour market or for financial services. Data shared for research purposes should lead to the development of new medicines or other health care products or services. MEPs want to ensure that all EU countries receive sufficient funding to protect the secondary use of data, and to avoid data falling under intellectual property rights or constituting trade secrets.


Quotes


Annalisa Tardino (ID, Italy), Civil Liberties Committee co-rapporteur, said: “The European Health Data Space will contribute to providing state-of-the-art healthcare to patients everywhere in the EU. We have included in the text significant reinforcements regarding the protection of sensitive personal data, striking a balance between exchanging health data for treatment and life-saving research, and protecting the privacy of our citizens.”

Tomislav Sokol (EPP, Croatia), Environment Committee co-rapporteur, said: “The European Health Data Space represents a central building block of the European Health Union and a milestone in the EU’s digital transformation. It is one of the few pieces of EU legislation where we create something completely new at the European level. It will empower citizens by enhancing healthcare at a national and cross-border level, and will facilitate the responsible sharing of health data - boosting research and innovation.”


Press conference


On Wednesday 13 December at 14:00 CET, co-rapporteurs Annalisa Tardino (ID, Italy) and Tomislav Sokol (EPP, Croatia) will discuss the Parliament position ahead of negotiations with the Council, and answer questions. You can follow the event here.


Next steps


Parliament is now ready to start talks with the member states, who adopted their position on 6 December, on the final form of the law.

 
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    EP supports creating EU Health Data Space to boost access to data and research 

    Persbericht 
     
     
    • Citizens will be able to access prescriptions, imagery and lab tests from different EU member states 
    • Aggregated health data to be shared for research purposes e.g. into cancer and rare diseases 
    • Strong privacy safeguards governing how and for what aim sensitive data are shared  

    On Wednesday, MEPs adopted their position on creating a European Health Data Space to ease access to personal health data and boost secure sharing.

    The new European Health Data Space (EHDS) would empower citizens to control their personal healthcare data and facilitate secure sharing for research and altruistic (i.e. not-for-profit) purposes. Plenary adopted the report, which will serve as Parliament’s negotiating mandate in talks with Council on the final form of the legislation, with 516 votes in favour, 95 against, and 20 abstentions.


    Better healthcare with portability rights


    The law would give patients the right to access their personal health data across the EU’s different healthcare systems (so-called primary use), and allow health professionals to access data on their patients, strictly based on what is necessary for a given treatment. Access would include patient summaries, electronic prescriptions, medical imagery and laboratory results.

    Each country would establish national health data access services based on the MyHealth@EU platform. The law would also set out rules on the quality and security of data for providers of Electronic Health Records (EHR) systems in the EU, to be monitored by national market surveillance authorities.


    Data-sharing for the common good with safeguards


    The EHDS would allow aggregated health data, including on pathogens, health claims and reimbursements, genetic data and public health registry information, to be shared for public interest reasons, including research, innovation, policy-making, education and patient safety purposes (so-called secondary use). Sharing data for advertising or for assessing insurance requests will be banned.


    Stronger safeguards for sensitive data


    MEPs want patients to have more say in how health care providers use their data. They propose an opt-out system for the secondary use of most health data, and demand that it be mandatory to have a patient’s explicit consent for the secondary use of certain sensitive data (e.g. genetic and genomic information).

    Parliament also aims to expand the secondary uses to be banned, for example in the labour market or for financial services. Data shared for research purposes should lead to the development of new medicines or other health care products or services. MEPs want to ensure that all EU countries receive sufficient funding to protect the secondary use of data, and to avoid data falling under intellectual property rights or constituting trade secrets.


    Quotes


    Annalisa Tardino (ID, Italy), Civil Liberties Committee co-rapporteur, said: “The European Health Data Space will contribute to providing state-of-the-art healthcare to patients everywhere in the EU. We have included in the text significant reinforcements regarding the protection of sensitive personal data, striking a balance between exchanging health data for treatment and life-saving research, and protecting the privacy of our citizens.”

    Tomislav Sokol (EPP, Croatia), Environment Committee co-rapporteur, said: “The European Health Data Space represents a central building block of the European Health Union and a milestone in the EU’s digital transformation. It is one of the few pieces of EU legislation where we create something completely new at the European level. It will empower citizens by enhancing healthcare at a national and cross-border level, and will facilitate the responsible sharing of health data - boosting research and innovation.”


    Press conference


    On Wednesday 13 December at 14:00 CET, co-rapporteurs Annalisa Tardino (ID, Italy) and Tomislav Sokol (EPP, Croatia) will discuss the Parliament position ahead of negotiations with the Council, and answer questions. You can follow the event here.


    Next steps


    Parliament is now ready to start talks with the member states, who adopted their position on 6 December, on the final form of the law.

     
     

    EP supports creating EU Health Data Space to boost access to data and research 

    Persbericht 
     
     

    EP supports creating EU Health Data Space to boost access to data and research 

    Persbericht 
     
     
     

    EP supports creating EU Health Data Space to boost access to data and research 

    Persbericht 
     

    EP supports creating EU Health Data Space to boost access to data and research 

    Persbericht 
     

    EP supports creating EU Health Data Space to boost access to data and research 

    Persbericht 
     

    EP supports creating EU Health Data Space to boost access to data and research 

    EP supports creating EU Health Data Space to boost access to data and research 
    EP supports creating EU Health Data Space to boost access to data and research 
    Persbericht 
     
    Persbericht 
    Persbericht  Plenaire vergadering  Plenaire vergadering  ENVI  ENVIENVI  LIBE  LIBELIBE 
     
     
     
    • Citizens will be able to access prescriptions, imagery and lab tests from different EU member states 
    • Aggregated health data to be shared for research purposes e.g. into cancer and rare diseases 
    • Strong privacy safeguards governing how and for what aim sensitive data are shared  

    On Wednesday, MEPs adopted their position on creating a European Health Data Space to ease access to personal health data and boost secure sharing.

    The new European Health Data Space (EHDS) would empower citizens to control their personal healthcare data and facilitate secure sharing for research and altruistic (i.e. not-for-profit) purposes. Plenary adopted the report, which will serve as Parliament’s negotiating mandate in talks with Council on the final form of the legislation, with 516 votes in favour, 95 against, and 20 abstentions.


    Better healthcare with portability rights


    The law would give patients the right to access their personal health data across the EU’s different healthcare systems (so-called primary use), and allow health professionals to access data on their patients, strictly based on what is necessary for a given treatment. Access would include patient summaries, electronic prescriptions, medical imagery and laboratory results.

    Each country would establish national health data access services based on the MyHealth@EU platform. The law would also set out rules on the quality and security of data for providers of Electronic Health Records (EHR) systems in the EU, to be monitored by national market surveillance authorities.


    Data-sharing for the common good with safeguards


    The EHDS would allow aggregated health data, including on pathogens, health claims and reimbursements, genetic data and public health registry information, to be shared for public interest reasons, including research, innovation, policy-making, education and patient safety purposes (so-called secondary use). Sharing data for advertising or for assessing insurance requests will be banned.


    Stronger safeguards for sensitive data


    MEPs want patients to have more say in how health care providers use their data. They propose an opt-out system for the secondary use of most health data, and demand that it be mandatory to have a patient’s explicit consent for the secondary use of certain sensitive data (e.g. genetic and genomic information).

    Parliament also aims to expand the secondary uses to be banned, for example in the labour market or for financial services. Data shared for research purposes should lead to the development of new medicines or other health care products or services. MEPs want to ensure that all EU countries receive sufficient funding to protect the secondary use of data, and to avoid data falling under intellectual property rights or constituting trade secrets.


    Quotes


    Annalisa Tardino (ID, Italy), Civil Liberties Committee co-rapporteur, said: “The European Health Data Space will contribute to providing state-of-the-art healthcare to patients everywhere in the EU. We have included in the text significant reinforcements regarding the protection of sensitive personal data, striking a balance between exchanging health data for treatment and life-saving research, and protecting the privacy of our citizens.”

    Tomislav Sokol (EPP, Croatia), Environment Committee co-rapporteur, said: “The European Health Data Space represents a central building block of the European Health Union and a milestone in the EU’s digital transformation. It is one of the few pieces of EU legislation where we create something completely new at the European level. It will empower citizens by enhancing healthcare at a national and cross-border level, and will facilitate the responsible sharing of health data - boosting research and innovation.”


    Press conference


    On Wednesday 13 December at 14:00 CET, co-rapporteurs Annalisa Tardino (ID, Italy) and Tomislav Sokol (EPP, Croatia) will discuss the Parliament position ahead of negotiations with the Council, and answer questions. You can follow the event here.


    Next steps


    Parliament is now ready to start talks with the member states, who adopted their position on 6 December, on the final form of the law.

     
     
    • Citizens will be able to access prescriptions, imagery and lab tests from different EU member states 
    • Aggregated health data to be shared for research purposes e.g. into cancer and rare diseases 
    • Strong privacy safeguards governing how and for what aim sensitive data are shared  

    On Wednesday, MEPs adopted their position on creating a European Health Data Space to ease access to personal health data and boost secure sharing.

    The new European Health Data Space (EHDS) would empower citizens to control their personal healthcare data and facilitate secure sharing for research and altruistic (i.e. not-for-profit) purposes. Plenary adopted the report, which will serve as Parliament’s negotiating mandate in talks with Council on the final form of the legislation, with 516 votes in favour, 95 against, and 20 abstentions.


    Better healthcare with portability rights


    The law would give patients the right to access their personal health data across the EU’s different healthcare systems (so-called primary use), and allow health professionals to access data on their patients, strictly based on what is necessary for a given treatment. Access would include patient summaries, electronic prescriptions, medical imagery and laboratory results.

    Each country would establish national health data access services based on the MyHealth@EU platform. The law would also set out rules on the quality and security of data for providers of Electronic Health Records (EHR) systems in the EU, to be monitored by national market surveillance authorities.


    Data-sharing for the common good with safeguards


    The EHDS would allow aggregated health data, including on pathogens, health claims and reimbursements, genetic data and public health registry information, to be shared for public interest reasons, including research, innovation, policy-making, education and patient safety purposes (so-called secondary use). Sharing data for advertising or for assessing insurance requests will be banned.


    Stronger safeguards for sensitive data


    MEPs want patients to have more say in how health care providers use their data. They propose an opt-out system for the secondary use of most health data, and demand that it be mandatory to have a patient’s explicit consent for the secondary use of certain sensitive data (e.g. genetic and genomic information).

    Parliament also aims to expand the secondary uses to be banned, for example in the labour market or for financial services. Data shared for research purposes should lead to the development of new medicines or other health care products or services. MEPs want to ensure that all EU countries receive sufficient funding to protect the secondary use of data, and to avoid data falling under intellectual property rights or constituting trade secrets.


    Quotes


    Annalisa Tardino (ID, Italy), Civil Liberties Committee co-rapporteur, said: “The European Health Data Space will contribute to providing state-of-the-art healthcare to patients everywhere in the EU. We have included in the text significant reinforcements regarding the protection of sensitive personal data, striking a balance between exchanging health data for treatment and life-saving research, and protecting the privacy of our citizens.”

    Tomislav Sokol (EPP, Croatia), Environment Committee co-rapporteur, said: “The European Health Data Space represents a central building block of the European Health Union and a milestone in the EU’s digital transformation. It is one of the few pieces of EU legislation where we create something completely new at the European level. It will empower citizens by enhancing healthcare at a national and cross-border level, and will facilitate the responsible sharing of health data - boosting research and innovation.”


    Press conference


    On Wednesday 13 December at 14:00 CET, co-rapporteurs Annalisa Tardino (ID, Italy) and Tomislav Sokol (EPP, Croatia) will discuss the Parliament position ahead of negotiations with the Council, and answer questions. You can follow the event here.


    Next steps


    Parliament is now ready to start talks with the member states, who adopted their position on 6 December, on the final form of the law.

     
     
     

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    • Citizens will be able to access prescriptions, imagery and lab tests from different EU member states 
    • Aggregated health data to be shared for research purposes e.g. into cancer and rare diseases 
    • Strong privacy safeguards governing how and for what aim sensitive data are shared  

    On Wednesday, MEPs adopted their position on creating a European Health Data Space to ease access to personal health data and boost secure sharing.

    The new European Health Data Space (EHDS) would empower citizens to control their personal healthcare data and facilitate secure sharing for research and altruistic (i.e. not-for-profit) purposes. Plenary adopted the report, which will serve as Parliament’s negotiating mandate in talks with Council on the final form of the legislation, with 516 votes in favour, 95 against, and 20 abstentions.


    Better healthcare with portability rights


    The law would give patients the right to access their personal health data across the EU’s different healthcare systems (so-called primary use), and allow health professionals to access data on their patients, strictly based on what is necessary for a given treatment. Access would include patient summaries, electronic prescriptions, medical imagery and laboratory results.

    Each country would establish national health data access services based on the MyHealth@EU platform. The law would also set out rules on the quality and security of data for providers of Electronic Health Records (EHR) systems in the EU, to be monitored by national market surveillance authorities.


    Data-sharing for the common good with safeguards


    The EHDS would allow aggregated health data, including on pathogens, health claims and reimbursements, genetic data and public health registry information, to be shared for public interest reasons, including research, innovation, policy-making, education and patient safety purposes (so-called secondary use). Sharing data for advertising or for assessing insurance requests will be banned.


    Stronger safeguards for sensitive data


    MEPs want patients to have more say in how health care providers use their data. They propose an opt-out system for the secondary use of most health data, and demand that it be mandatory to have a patient’s explicit consent for the secondary use of certain sensitive data (e.g. genetic and genomic information).

    Parliament also aims to expand the secondary uses to be banned, for example in the labour market or for financial services. Data shared for research purposes should lead to the development of new medicines or other health care products or services. MEPs want to ensure that all EU countries receive sufficient funding to protect the secondary use of data, and to avoid data falling under intellectual property rights or constituting trade secrets.


    Quotes


    Annalisa Tardino (ID, Italy), Civil Liberties Committee co-rapporteur, said: “The European Health Data Space will contribute to providing state-of-the-art healthcare to patients everywhere in the EU. We have included in the text significant reinforcements regarding the protection of sensitive personal data, striking a balance between exchanging health data for treatment and life-saving research, and protecting the privacy of our citizens.”

    Tomislav Sokol (EPP, Croatia), Environment Committee co-rapporteur, said: “The European Health Data Space represents a central building block of the European Health Union and a milestone in the EU’s digital transformation. It is one of the few pieces of EU legislation where we create something completely new at the European level. It will empower citizens by enhancing healthcare at a national and cross-border level, and will facilitate the responsible sharing of health data - boosting research and innovation.”


    Press conference


    On Wednesday 13 December at 14:00 CET, co-rapporteurs Annalisa Tardino (ID, Italy) and Tomislav Sokol (EPP, Croatia) will discuss the Parliament position ahead of negotiations with the Council, and answer questions. You can follow the event here.


    Next steps


    Parliament is now ready to start talks with the member states, who adopted their position on 6 December, on the final form of the law.

    • Citizens will be able to access prescriptions, imagery and lab tests from different EU member states 
    • Aggregated health data to be shared for research purposes e.g. into cancer and rare diseases 
    • Strong privacy safeguards governing how and for what aim sensitive data are shared  

    On Wednesday, MEPs adopted their position on creating a European Health Data Space to ease access to personal health data and boost secure sharing.

    The new European Health Data Space (EHDS) would empower citizens to control their personal healthcare data and facilitate secure sharing for research and altruistic (i.e. not-for-profit) purposes. Plenary adopted the report, which will serve as Parliament’s negotiating mandate in talks with Council on the final form of the legislation, with 516 votes in favour, 95 against, and 20 abstentions.


    Better healthcare with portability rights


    The law would give patients the right to access their personal health data across the EU’s different healthcare systems (so-called primary use), and allow health professionals to access data on their patients, strictly based on what is necessary for a given treatment. Access would include patient summaries, electronic prescriptions, medical imagery and laboratory results.

    Each country would establish national health data access services based on the MyHealth@EU platform. The law would also set out rules on the quality and security of data for providers of Electronic Health Records (EHR) systems in the EU, to be monitored by national market surveillance authorities.


    Data-sharing for the common good with safeguards


    The EHDS would allow aggregated health data, including on pathogens, health claims and reimbursements, genetic data and public health registry information, to be shared for public interest reasons, including research, innovation, policy-making, education and patient safety purposes (so-called secondary use). Sharing data for advertising or for assessing insurance requests will be banned.


    Stronger safeguards for sensitive data


    MEPs want patients to have more say in how health care providers use their data. They propose an opt-out system for the secondary use of most health data, and demand that it be mandatory to have a patient’s explicit consent for the secondary use of certain sensitive data (e.g. genetic and genomic information).

    Parliament also aims to expand the secondary uses to be banned, for example in the labour market or for financial services. Data shared for research purposes should lead to the development of new medicines or other health care products or services. MEPs want to ensure that all EU countries receive sufficient funding to protect the secondary use of data, and to avoid data falling under intellectual property rights or constituting trade secrets.


    Quotes


    Annalisa Tardino (ID, Italy), Civil Liberties Committee co-rapporteur, said: “The European Health Data Space will contribute to providing state-of-the-art healthcare to patients everywhere in the EU. We have included in the text significant reinforcements regarding the protection of sensitive personal data, striking a balance between exchanging health data for treatment and life-saving research, and protecting the privacy of our citizens.”

    Tomislav Sokol (EPP, Croatia), Environment Committee co-rapporteur, said: “The European Health Data Space represents a central building block of the European Health Union and a milestone in the EU’s digital transformation. It is one of the few pieces of EU legislation where we create something completely new at the European level. It will empower citizens by enhancing healthcare at a national and cross-border level, and will facilitate the responsible sharing of health data - boosting research and innovation.”


    Press conference


    On Wednesday 13 December at 14:00 CET, co-rapporteurs Annalisa Tardino (ID, Italy) and Tomislav Sokol (EPP, Croatia) will discuss the Parliament position ahead of negotiations with the Council, and answer questions. You can follow the event here.


    Next steps


    Parliament is now ready to start talks with the member states, who adopted their position on 6 December, on the final form of the law.

    • Citizens will be able to access prescriptions, imagery and lab tests from different EU member states 
    • Aggregated health data to be shared for research purposes e.g. into cancer and rare diseases 
    • Strong privacy safeguards governing how and for what aim sensitive data are shared  

    On Wednesday, MEPs adopted their position on creating a European Health Data Space to ease access to personal health data and boost secure sharing.

    The new European Health Data Space (EHDS) would empower citizens to control their personal healthcare data and facilitate secure sharing for research and altruistic (i.e. not-for-profit) purposes. Plenary adopted the report, which will serve as Parliament’s negotiating mandate in talks with Council on the final form of the legislation, with 516 votes in favour, 95 against, and 20 abstentions.


    Better healthcare with portability rights


    The law would give patients the right to access their personal health data across the EU’s different healthcare systems (so-called primary use), and allow health professionals to access data on their patients, strictly based on what is necessary for a given treatment. Access would include patient summaries, electronic prescriptions, medical imagery and laboratory results.

    Each country would establish national health data access services based on the MyHealth@EU platform. The law would also set out rules on the quality and security of data for providers of Electronic Health Records (EHR) systems in the EU, to be monitored by national market surveillance authorities.


    Data-sharing for the common good with safeguards


    The EHDS would allow aggregated health data, including on pathogens, health claims and reimbursements, genetic data and public health registry information, to be shared for public interest reasons, including research, innovation, policy-making, education and patient safety purposes (so-called secondary use). Sharing data for advertising or for assessing insurance requests will be banned.


    Stronger safeguards for sensitive data


    MEPs want patients to have more say in how health care providers use their data. They propose an opt-out system for the secondary use of most health data, and demand that it be mandatory to have a patient’s explicit consent for the secondary use of certain sensitive data (e.g. genetic and genomic information).

    Parliament also aims to expand the secondary uses to be banned, for example in the labour market or for financial services. Data shared for research purposes should lead to the development of new medicines or other health care products or services. MEPs want to ensure that all EU countries receive sufficient funding to protect the secondary use of data, and to avoid data falling under intellectual property rights or constituting trade secrets.


    Quotes


    Annalisa Tardino (ID, Italy), Civil Liberties Committee co-rapporteur, said: “The European Health Data Space will contribute to providing state-of-the-art healthcare to patients everywhere in the EU. We have included in the text significant reinforcements regarding the protection of sensitive personal data, striking a balance between exchanging health data for treatment and life-saving research, and protecting the privacy of our citizens.”

    Tomislav Sokol (EPP, Croatia), Environment Committee co-rapporteur, said: “The European Health Data Space represents a central building block of the European Health Union and a milestone in the EU’s digital transformation. It is one of the few pieces of EU legislation where we create something completely new at the European level. It will empower citizens by enhancing healthcare at a national and cross-border level, and will facilitate the responsible sharing of health data - boosting research and innovation.”


    Press conference


    On Wednesday 13 December at 14:00 CET, co-rapporteurs Annalisa Tardino (ID, Italy) and Tomislav Sokol (EPP, Croatia) will discuss the Parliament position ahead of negotiations with the Council, and answer questions. You can follow the event here.


    Next steps


    Parliament is now ready to start talks with the member states, who adopted their position on 6 December, on the final form of the law.

    • Citizens will be able to access prescriptions, imagery and lab tests from different EU member states 
    • Aggregated health data to be shared for research purposes e.g. into cancer and rare diseases 
    • Strong privacy safeguards governing how and for what aim sensitive data are shared  
    • Citizens will be able to access prescriptions, imagery and lab tests from different EU member states 
    • Aggregated health data to be shared for research purposes e.g. into cancer and rare diseases 
    • Strong privacy safeguards governing how and for what aim sensitive data are shared  
    • Citizens will be able to access prescriptions, imagery and lab tests from different EU member states 
    • Aggregated health data to be shared for research purposes e.g. into cancer and rare diseases 
    • Strong privacy safeguards governing how and for what aim sensitive data are shared  
    • Citizens will be able to access prescriptions, imagery and lab tests from different EU member states 
    • Aggregated health data to be shared for research purposes e.g. into cancer and rare diseases 
    • Strong privacy safeguards governing how and for what aim sensitive data are shared  
    • Citizens will be able to access prescriptions, imagery and lab tests from different EU member states 
    • Aggregated health data to be shared for research purposes e.g. into cancer and rare diseases 
    • Strong privacy safeguards governing how and for what aim sensitive data are shared  
  • Citizens will be able to access prescriptions, imagery and lab tests from different EU member states 
  • Citizens will be able to access prescriptions, imagery and lab tests from different EU member states 
    Citizens will be able to access prescriptions, imagery and lab tests from different EU member states 
  • Aggregated health data to be shared for research purposes e.g. into cancer and rare diseases 
  • Aggregated health data to be shared for research purposes e.g. into cancer and rare diseases 
    Aggregated health data to be shared for research purposes e.g. into cancer and rare diseases 
  • Strong privacy safeguards governing how and for what aim sensitive data are shared  
  • Strong privacy safeguards governing how and for what aim sensitive data are shared  
    Strong privacy safeguards governing how and for what aim sensitive data are shared  

    On Wednesday, MEPs adopted their position on creating a European Health Data Space to ease access to personal health data and boost secure sharing.

    On Wednesday, MEPs adopted their position on creating a European Health Data Space to ease access to personal health data and boost secure sharing.

    On Wednesday, MEPs adopted their position on creating a European Health Data Space to ease access to personal health data and boost secure sharing.

    On Wednesday, MEPs adopted their position on creating a European Health Data Space to ease access to personal health data and boost secure sharing.

    The new European Health Data Space (EHDS) would empower citizens to control their personal healthcare data and facilitate secure sharing for research and altruistic (i.e. not-for-profit) purposes. Plenary adopted the report, which will serve as Parliament’s negotiating mandate in talks with Council on the final form of the legislation, with 516 votes in favour, 95 against, and 20 abstentions.


    Better healthcare with portability rights


    The law would give patients the right to access their personal health data across the EU’s different healthcare systems (so-called primary use), and allow health professionals to access data on their patients, strictly based on what is necessary for a given treatment. Access would include patient summaries, electronic prescriptions, medical imagery and laboratory results.

    Each country would establish national health data access services based on the MyHealth@EU platform. The law would also set out rules on the quality and security of data for providers of Electronic Health Records (EHR) systems in the EU, to be monitored by national market surveillance authorities.


    Data-sharing for the common good with safeguards


    The EHDS would allow aggregated health data, including on pathogens, health claims and reimbursements, genetic data and public health registry information, to be shared for public interest reasons, including research, innovation, policy-making, education and patient safety purposes (so-called secondary use). Sharing data for advertising or for assessing insurance requests will be banned.


    Stronger safeguards for sensitive data


    MEPs want patients to have more say in how health care providers use their data. They propose an opt-out system for the secondary use of most health data, and demand that it be mandatory to have a patient’s explicit consent for the secondary use of certain sensitive data (e.g. genetic and genomic information).

    Parliament also aims to expand the secondary uses to be banned, for example in the labour market or for financial services. Data shared for research purposes should lead to the development of new medicines or other health care products or services. MEPs want to ensure that all EU countries receive sufficient funding to protect the secondary use of data, and to avoid data falling under intellectual property rights or constituting trade secrets.


    Quotes


    Annalisa Tardino (ID, Italy), Civil Liberties Committee co-rapporteur, said: “The European Health Data Space will contribute to providing state-of-the-art healthcare to patients everywhere in the EU. We have included in the text significant reinforcements regarding the protection of sensitive personal data, striking a balance between exchanging health data for treatment and life-saving research, and protecting the privacy of our citizens.”

    Tomislav Sokol (EPP, Croatia), Environment Committee co-rapporteur, said: “The European Health Data Space represents a central building block of the European Health Union and a milestone in the EU’s digital transformation. It is one of the few pieces of EU legislation where we create something completely new at the European level. It will empower citizens by enhancing healthcare at a national and cross-border level, and will facilitate the responsible sharing of health data - boosting research and innovation.”


    Press conference


    On Wednesday 13 December at 14:00 CET, co-rapporteurs Annalisa Tardino (ID, Italy) and Tomislav Sokol (EPP, Croatia) will discuss the Parliament position ahead of negotiations with the Council, and answer questions. You can follow the event here.


    Next steps


    Parliament is now ready to start talks with the member states, who adopted their position on 6 December, on the final form of the law.

    The new European Health Data Space (EHDS) would empower citizens to control their personal healthcare data and facilitate secure sharing for research and altruistic (i.e. not-for-profit) purposes. Plenary adopted the report, which will serve as Parliament’s negotiating mandate in talks with Council on the final form of the legislation, with 516 votes in favour, 95 against, and 20 abstentions.


    Better healthcare with portability rights


    The law would give patients the right to access their personal health data across the EU’s different healthcare systems (so-called primary use), and allow health professionals to access data on their patients, strictly based on what is necessary for a given treatment. Access would include patient summaries, electronic prescriptions, medical imagery and laboratory results.

    Each country would establish national health data access services based on the MyHealth@EU platform. The law would also set out rules on the quality and security of data for providers of Electronic Health Records (EHR) systems in the EU, to be monitored by national market surveillance authorities.


    Data-sharing for the common good with safeguards


    The EHDS would allow aggregated health data, including on pathogens, health claims and reimbursements, genetic data and public health registry information, to be shared for public interest reasons, including research, innovation, policy-making, education and patient safety purposes (so-called secondary use). Sharing data for advertising or for assessing insurance requests will be banned.


    Stronger safeguards for sensitive data


    MEPs want patients to have more say in how health care providers use their data. They propose an opt-out system for the secondary use of most health data, and demand that it be mandatory to have a patient’s explicit consent for the secondary use of certain sensitive data (e.g. genetic and genomic information).

    Parliament also aims to expand the secondary uses to be banned, for example in the labour market or for financial services. Data shared for research purposes should lead to the development of new medicines or other health care products or services. MEPs want to ensure that all EU countries receive sufficient funding to protect the secondary use of data, and to avoid data falling under intellectual property rights or constituting trade secrets.


    Quotes


    Annalisa Tardino (ID, Italy), Civil Liberties Committee co-rapporteur, said: “The European Health Data Space will contribute to providing state-of-the-art healthcare to patients everywhere in the EU. We have included in the text significant reinforcements regarding the protection of sensitive personal data, striking a balance between exchanging health data for treatment and life-saving research, and protecting the privacy of our citizens.”

    Tomislav Sokol (EPP, Croatia), Environment Committee co-rapporteur, said: “The European Health Data Space represents a central building block of the European Health Union and a milestone in the EU’s digital transformation. It is one of the few pieces of EU legislation where we create something completely new at the European level. It will empower citizens by enhancing healthcare at a national and cross-border level, and will facilitate the responsible sharing of health data - boosting research and innovation.”


    Press conference


    On Wednesday 13 December at 14:00 CET, co-rapporteurs Annalisa Tardino (ID, Italy) and Tomislav Sokol (EPP, Croatia) will discuss the Parliament position ahead of negotiations with the Council, and answer questions. You can follow the event here.


    Next steps


    Parliament is now ready to start talks with the member states, who adopted their position on 6 December, on the final form of the law.

    The new European Health Data Space (EHDS) would empower citizens to control their personal healthcare data and facilitate secure sharing for research and altruistic (i.e. not-for-profit) purposes. Plenary adopted the report, which will serve as Parliament’s negotiating mandate in talks with Council on the final form of the legislation, with 516 votes in favour, 95 against, and 20 abstentions.


    Better healthcare with portability rights


    The law would give patients the right to access their personal health data across the EU’s different healthcare systems (so-called primary use), and allow health professionals to access data on their patients, strictly based on what is necessary for a given treatment. Access would include patient summaries, electronic prescriptions, medical imagery and laboratory results.

    Each country would establish national health data access services based on the MyHealth@EU platform. The law would also set out rules on the quality and security of data for providers of Electronic Health Records (EHR) systems in the EU, to be monitored by national market surveillance authorities.


    Data-sharing for the common good with safeguards


    The EHDS would allow aggregated health data, including on pathogens, health claims and reimbursements, genetic data and public health registry information, to be shared for public interest reasons, including research, innovation, policy-making, education and patient safety purposes (so-called secondary use). Sharing data for advertising or for assessing insurance requests will be banned.


    Stronger safeguards for sensitive data


    MEPs want patients to have more say in how health care providers use their data. They propose an opt-out system for the secondary use of most health data, and demand that it be mandatory to have a patient’s explicit consent for the secondary use of certain sensitive data (e.g. genetic and genomic information).

    Parliament also aims to expand the secondary uses to be banned, for example in the labour market or for financial services. Data shared for research purposes should lead to the development of new medicines or other health care products or services. MEPs want to ensure that all EU countries receive sufficient funding to protect the secondary use of data, and to avoid data falling under intellectual property rights or constituting trade secrets.


    Quotes


    Annalisa Tardino (ID, Italy), Civil Liberties Committee co-rapporteur, said: “The European Health Data Space will contribute to providing state-of-the-art healthcare to patients everywhere in the EU. We have included in the text significant reinforcements regarding the protection of sensitive personal data, striking a balance between exchanging health data for treatment and life-saving research, and protecting the privacy of our citizens.”

    Tomislav Sokol (EPP, Croatia), Environment Committee co-rapporteur, said: “The European Health Data Space represents a central building block of the European Health Union and a milestone in the EU’s digital transformation. It is one of the few pieces of EU legislation where we create something completely new at the European level. It will empower citizens by enhancing healthcare at a national and cross-border level, and will facilitate the responsible sharing of health data - boosting research and innovation.”


    Press conference


    On Wednesday 13 December at 14:00 CET, co-rapporteurs Annalisa Tardino (ID, Italy) and Tomislav Sokol (EPP, Croatia) will discuss the Parliament position ahead of negotiations with the Council, and answer questions. You can follow the event here.


    Next steps


    Parliament is now ready to start talks with the member states, who adopted their position on 6 December, on the final form of the law.

    The new European Health Data Space (EHDS) would empower citizens to control their personal healthcare data and facilitate secure sharing for research and altruistic (i.e. not-for-profit) purposes. Plenary adopted the report, which will serve as Parliament’s negotiating mandate in talks with Council on the final form of the legislation, with 516 votes in favour, 95 against, and 20 abstentions.


    Better healthcare with portability rights


    Better healthcare with portability rights


    The law would give patients the right to access their personal health data across the EU’s different healthcare systems (so-called primary use), and allow health professionals to access data on their patients, strictly based on what is necessary for a given treatment. Access would include patient summaries, electronic prescriptions, medical imagery and laboratory results.


    Each country would establish national health data access services based on the MyHealth@EU platform. The law would also set out rules on the quality and security of data for providers of Electronic Health Records (EHR) systems in the EU, to be monitored by national market surveillance authorities.

    MyHealth@EU


    Data-sharing for the common good with safeguards


    Data-sharing for the common good with safeguards


    The EHDS would allow aggregated health data, including on pathogens, health claims and reimbursements, genetic data and public health registry information, to be shared for public interest reasons, including research, innovation, policy-making, education and patient safety purposes (so-called secondary use). Sharing data for advertising or for assessing insurance requests will be banned.



    Stronger safeguards for sensitive data


    Stronger safeguards for sensitive data


    MEPs want patients to have more say in how health care providers use their data. They propose an opt-out system for the secondary use of most health data, and demand that it be mandatory to have a patient’s explicit consent for the secondary use of certain sensitive data (e.g. genetic and genomic information).


    Parliament also aims to expand the secondary uses to be banned, for example in the labour market or for financial services. Data shared for research purposes should lead to the development of new medicines or other health care products or services. MEPs want to ensure that all EU countries receive sufficient funding to protect the secondary use of data, and to avoid data falling under intellectual property rights or constituting trade secrets.


    Quotes


    Quotes


    Annalisa Tardino (ID, Italy), Civil Liberties Committee co-rapporteur, said: “The European Health Data Space will contribute to providing state-of-the-art healthcare to patients everywhere in the EU. We have included in the text significant reinforcements regarding the protection of sensitive personal data, striking a balance between exchanging health data for treatment and life-saving research, and protecting the privacy of our citizens.”


    Annalisa Tardino

    Tomislav Sokol (EPP, Croatia), Environment Committee co-rapporteur, said: “The European Health Data Space represents a central building block of the European Health Union and a milestone in the EU’s digital transformation. It is one of the few pieces of EU legislation where we create something completely new at the European level. It will empower citizens by enhancing healthcare at a national and cross-border level, and will facilitate the responsible sharing of health data - boosting research and innovation.”

    Tomislav Sokol


    Press conference


    Press conference


    On Wednesday 13 December at 14:00 CET, co-rapporteurs Annalisa Tardino (ID, Italy) and Tomislav Sokol (EPP, Croatia) will discuss the Parliament position ahead of negotiations with the Council, and answer questions. You can follow the event here.


    Annalisa TardinoTomislav Sokolhere


    Next steps


    Next steps


    Parliament is now ready to start talks with the member states, who adopted their position on 6 December, on the final form of the law.


    Contact: 

    Contact: 
    Contact: 
  • Janne OJAMO 

    Janne OJAMO Janne OJAMO 
    Press Officer 
    Press Officer Press Officer 
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    Contactgegevens: 
  • Telefoonnummer: (+32) 2 284 12 50 (BXL) 
  • Telefoonnummer: (+32) 2 284 12 50 (BXL) Telefoonnummer: (+32) 2 284 12 50 (BXL)Telefoonnummer: (BXL) 
  • Mobiel telefoonnummer: (+32) 470 89 21 92 
  • Mobiel telefoonnummer: (+32) 470 89 21 92 Mobiel telefoonnummer: (+32) 470 89 21 92Mobiel telefoonnummer:  
  • E-mail: janne.ojamo@europarl.europa.eu 
  • E-mail: janne.ojamo@europarl.europa.eu E-mail: janne.ojamo@europarl.europa.euE-mail:  
  • E-mail: libe-press@europarl.europa.eu 
  • E-mail: libe-press@europarl.europa.eu E-mail: libe-press@europarl.europa.euE-mail:  
  • Twitteraccount: @EP_Justice 
  • Twitteraccount: @EP_Justice Twitteraccount: @EP_JusticeTwitteraccount:  
  • Dana POPP 

    Dana POPP Dana POPP 
    Press Officer 
    Press Officer Press Officer 
    Contactgegevens: 
    Contactgegevens: 
  • Telefoonnummer: (+32) 2 28 46330 (BXL) 
  • Telefoonnummer: (+32) 2 28 46330 (BXL) Telefoonnummer: (+32) 2 28 46330 (BXL)Telefoonnummer: (BXL) 
  • Mobiel telefoonnummer: (+32) 470 95 17 07 
  • Mobiel telefoonnummer: (+32) 470 95 17 07 Mobiel telefoonnummer: (+32) 470 95 17 07Mobiel telefoonnummer:  
  • E-mail: dana.popp@europarl.europa.eu 
  • E-mail: dana.popp@europarl.europa.eu E-mail: dana.popp@europarl.europa.euE-mail:  
  • E-mail: envi-press@europarl.europa.eu 
  • E-mail: envi-press@europarl.europa.eu E-mail: envi-press@europarl.europa.euE-mail:  
  • Twitteraccount: @EP_Environment 
  • Twitteraccount: @EP_Environment Twitteraccount: @EP_EnvironmentTwitteraccount:  
     
     

    Further information 

    Further information 
    Further information 
  • Adopted text (13.12.2023)  Adopted text (13.12.2023) 
  • Draft report  Draft report 
  • Recording of the plenary debate (12.12.2023)  Recording of the plenary debate (12.12.2023) 
  • Procedure file  Procedure file 
  • EP Research Service briefing  EP Research Service briefing 
  • Committee on Civil Liberties, Justice and Home Affairs  Committee on Civil Liberties, Justice and Home Affairs 
  • Committee on the Environment, Public Health and Food Safety  Committee on the Environment, Public Health and Food Safety 
     
     
     
     
     

    Productinformatie 

    REF.:  20231208IPR15783 

    Productinformatie 

    Productinformatie 
    Productinformatie 
    Productinformatie 
    REF.:  20231208IPR15783 
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